This part of the website contains news related to SMA, such as meeting reports and newsletters.
The evolving landscape of SMA, through challenges and solutions – Katia Patanella
Techniques to support intrathecal drug administration: In this video you hear about the latest publications from teen and adult cohorts supporting the use of nusinersen in SMA patients.
Biogen-238040 - April 2024
Experience with CT guided drug administration and 3D spine modelling – Marek Mechl
Techniques to support intrathecal drug administration: In this video you will familiarize yourself with computed tomography guided lumbar punctures and the use of 3D spine modelling.
Biogen-238698 - April 2024
Fluoroscopy-guided intrathecal therapy with nusinersen – tips and tricks – Jaime Pamplona
Techniques to support intrathecal drug administration: In this video you learn how the use of fluoroscopy can support intrathecal drug administration.
Biogen-238446 - April 2024
Patient experience - Quality of life
In this video, Simon Toftgaard Jespersen, Chairman of Muskelsvindfonden in Denmark (Danish patient advocacy group) is sharing his story of having SMA.
What do we know about Spinraza 5 years after its launch?
Lluís Pujadas, Senior Medical Manager, Biogen, Europe, will answer that!
LIS-N & LER-N report 2022
This report gives insight in the Listen & Learn meeting we had in 2022. The report gives insight in the speakers and what has been discussed throughout that meeting.
LIS-N & LER-N report 2021
This report gives insight in the Listen & Learn meeting we had in 2021. The report gives insight in the speakers and what has been discussed throughout that meeting.
LIS-N & LER-N report 2020
This report gives insight in the Listen & Learn meeting we had in 2020. The report gives insight in the speakers and what has been discussed throughout that meeting.
LIS-N & LER-N report 2019
This report gives insight in the Listen & Learn meeting we had in 2019. The report gives insight in the speakers and what has been discussed throughout that meeting.
