This part of the website contains news related to SMA, such as meeting reports and newsletters.
Patient experience - Quality of life
In this video, Simon Toftgaard Jespersen, Chairman of Muskelsvindfonden in Denmark (Danish patient advocacy group) is sharing his story of having SMA.
LIS-N & LER-N report 2022
This report gives insight in the Listen & Learn meeting we had in 2022. The report gives insight in the speakers and what has been discussed throughout that meeting.
LIS-N & LER-N report 2021
This report gives insight in the Listen & Learn meeting we had in 2021. The report gives insight in the speakers and what has been discussed throughout that meeting.
LIS-N & LER-N report 2020
This report gives insight in the Listen & Learn meeting we had in 2020. The report gives insight in the speakers and what has been discussed throughout that meeting.
LIS-N & LER-N report 2019
This report gives insight in the Listen & Learn meeting we had in 2019. The report gives insight in the speakers and what has been discussed throughout that meeting.
